Individual, parent and social-environmental correlates of caregiving experiences among parents of adults with autism spectrum disorder: Caregiving for adults with ASD (2016)
Meghan Burke & Tamar Heller
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Introduction: Compared to parents of adults with other types of disabilities, parents of adults with autism spectrum disorder (ASD) experience worse well-being. Thus, it is crucial to identify the individual, parent and social-environmental correlates of caregiving experiences among parents of adults with ASD. Method: For this study, 130 parents of adults with ASD responded to a survey about caregiving satisfaction, self-efficacy and burden. Results: Greater future planning and community involvement related to more caregiving satisfaction and increased caregiving self-efficacy, respectively. Less choicemaking of the adult with ASD related to greater caregiving satisfaction and self-efficacy. Maladaptive behaviours and poor health of the adult with ASD related to greater caregiving burden. Conclusions: Implications for policymakers, practitioners and future research are discussed.
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Burke, M., & Heller, T. (2016). Individual, parent and social–environmental correlates of caregiving experiences among parents of adults with autism spectrum disorder. Journal of Intellectual Disability Research, 60(5), 401-411.